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Archive for the IVF Category

My journey to motherhood and becoming a fertility coach

As I sit at my kitchen table and write this blog I am incredibly aware of just what a lot has happened over these last few years . And how , for all the noise , tantrums and lack of sleep I will never cease to be amazed that I have finally got here .That I can finally be a mum .I guess thats one of the only advantages to having had such a fight to get my family . I will never take it for granted .Change the scene to about 8 years ago and the situation was very different and in a sense  where our  journey began  . 

I had met my husband at university and always had a strong friendship as well as romantic hope for him . So it was with little suprise that we finally told family and friends that we were getting married in 1997 . We were very much in love and talked from early on about how great it would be to be parents .The summer before we officially started trying I remember being on holiday and writing a list together of our top girls and boys names for the family which lay just within our reach . There was such optimism and such hope . It was to be over so soon .We tried for a family for about 9 months before I could take it no longer and assumed there was something wrong .

I was never known for my patience and thus nearly everyone told me to calm down , stop trying so hard etc etc ….the usual . But deep down I really just wanted reassurance . And so I persuaded a doctor to do some initial tests on both of us . Fully expecting the results to match the helpful comments of friends and family . That we would be fine and to just relax more .However the results for my husband were utterly devestating . He was Azoospermic , there was no sperm whatsoever  present . The ” kindly ” doctor pronounced we would never have chidren and we were sent on our way .

And just like that our world crumbled and a new chapter began .We then went through every test we could do , choosing to use my savings rather than wait ..again that old impatience . I found out information about my inner workings that I never thought I would know . And certainly more about my husband than is common in most marriages !Finally we saw one of the top specialists in the country and were told in no uncertain terms that ours was one of the worst situations a couple could find themselves in .” If I were you mr Sizer i wouldnt put my wife through IVF but would look at Donor or adoption . You have a 1 in 125,000 chance of this ever working “To say my husband was crushed would be an understatement . And I grieved that day as Much for what it was doing to him as  for the loss of our dreams .

Over the next few weeks we re emerged from the duvet and began to talk . ..and talk ..and pray and talk . Until finally , and for no good practical reason we chose to give that 1 in 125,000 chance a go . Not good betting odds but I guess we needed to close the door before moving on .And so we started IVF number one at the lister clinic , a wonderful warm enviroment who supported us all the way , even when they felt it was a run to nothing .The cycle went badly to begin with and then got worse with the realisation that I was what they called a “poor responder ” ( how I hate that phrase !) and probably early menopausal ..just to add to the tension !!Finally however 4 eggs were obtained , my husband had a very painful op to remove the few sperm he did have and the wonderful world of science miraculously made 4 embryos .Just 3 days later 2 little bundles of potential were lit up on a screen and shown going into my womb …and so began the dreaded 2 week wait .Again we were so low on hope that I almost didnt do a test on the set date . But eventually we did . And amazingly 1 little ball had made it .I was pregnant !! 9 months of  elation and anxiety ensued until finally on April 26th 2003 our first miracle was born and Hope Sizer came into the world .We were literally over the moon to become parents and loved those early days with our new daughter .

And yet our dreams of a family had always been of two or more children .And though family and friends pretty much begged us not to keep going we entered the wonderful world of ART once again when Hope was just over a year old . The abridged version of what happened next was that amazingly , our odds actually seemed to get worse ! I was diagnosed with High FSH , and an over active immune system as well as the initial poor responder bit !  We went through 3 more cycles and two miscarriages before our final attempt at the ARGC clinic .This was to be it . Enough of the battering .And so a new regime was started ,new protocol and an immune suppresant drug for a mere £2000 extra .Two embryos put back in and …..well lets just say Barnaby sizer is a very meant little boy !

We finally felt like a family.I have done many things in my life that I am proud of and many things make me grateful . none of them howehver come close to the pride I feel personally and as a couple, in fighting for our family .It was without doubt the hardest thing I have ever done , possibly ever will do  , and amazingly it was worth it .During my time going through IVF I retrained from a counselling background , into Life coaching and began to specialise in supporting encouraging and resourcing couples through Infertility .

To come up with specific coping tools  through this most emotional of times .One of the key things I always say to people is to never belittle what you are facing . Infertility has recently been given a stress point reading akin to Cancer and Bereavement and as such a person dealing with fertility issues needs support . A new chapter has again then started for me through this work . A new chance to help support and encourage other people facing the difficulties of Infertility . Whether it is running the support group , running workshops or speaking to the media I remain passionate that people facing Infertility should be as best looked after as possible .

Best of luck to everyone reading this 

Anya Sizer

www.thefertilitycoach.co.uk     

Facing Many Crossroads, Together

Part Two: Coming upon a Crossroads, What You Need To Make Your Decisions

The first crossroads is likely to be when you decide to see the doctor because, despite your efforts, you have not conceived.   It isn’t everyone’s cup of tea, or culture, to expose their intimate life to the scrutiny of doctors or undergo blood tests and scans, checking for something “wrong.”  Some uninformed men may be unwilling to provide a semen sample, for fear of what the results may suggest about his manliness.

Both the woman and man may feel some anxiety about whose family line may be to “blame” for their inability to become pregnant.  If this pertains to you or your partner, you must cast these outdated stigmas aside and take some relatively simple tests to discover the cause of your infertility.  If having a baby is your ultimate goal, your value system may have to adapt to accept the help that modern medicine and technology offer.

The second crossroads is deciding whether to pursue more invasive medical investigations and/or treatment.  With a clear diagnosis and readily available treatment, it is easier to decide what to do because the options are more clearly set out.  Your personal life may present the deciding factor: your relationship, finances, career, religion or emotional wellbeing may all be taken into consideration.  Many couples have to contend with unexplained infertility, where early test results were ambiguous.  If you (or your doctor) are operating in the dark, it won’t do much for your confidence.  In this case, the dilemma about which treatment to pursue may be decided by not knowing what else to do. 

Whatever your decision, the most important factor is agreement between the partners, not only because cooperation, understanding and support are vital to keeping stress levels down, but also because it could mean the difference between having a genetic child or not.  From the point that you choose assisted conception you enter a different world; one where your daily life centres on the fertility clinic. For working men, the clinical, inconvenient scheduling, financial and sexual aspects of trying to conceive while being treated, put them into unfamiliar territory and cause stress.  Women will physically experience all of that, and possibly, mood swings, pain, invasive procedures and fear that time is running out as well. 

The decision-making shifts to:

  • Are you happy with the doctor/clinic you started with?
  • Should you try less invasive treatment first, or go straight to IVF?
  • Should we try complementary therapies before, or alongside, traditional medical treatment?
  • How will you pay for your treatment?
  • When should you begin treatment?
  • Can this be managed around your work and/or other obligations?
  • How many embryos do you want to implant? 
  • How many times will you undergo treatment?

These questions may have the two of you at a new crossroads every week. While some people may sail through and others agonize, it’s more likely that some decisions will bring up unexpected issues.  Pay really close attention how you are both functioning.  Your emotional state is important: Do either of you feel stressed, resentful, guilty, desperate, depressed, or hopeless?  Is one of you leaning one way and the other in another direction?  Are you fighting? That is where mutual respect, communication and agreement come into play.

Lisa Marsh is a Fertility Coach working with people on all aspects of fertility, including female and male infertility, pregnancy loss, assisted conception, alternative means of family-building and menopause.  Visit her blog http://yourgreatlife.typepad.com or her website http://yourgreatlife.co.uk for more information.  For coaching, email lisa@yourgreatlife.co.uk

Facing Many Crossroads, Together

Part One: How Do You Function as a Couple? 

Infertility is no picnic. There are months or even years of suspecting a problem, opening up about it, asking for help, educating yourselves about issues, medical terms, finding acceptance and making decisions about how to proceed.  It’s not entirely straightforward for most couples.  How can it be, unless you are incredibly agreeable, immediately find the right doctor and receive an unequivocal diagnosis and solution?  Often, I get annoyed by the over-used term “fertility journey,” but it fits here too perfectly to cast aside, as I describe various crossroads you may reach on the way to creating your family.  A crossroads, in this context, is one of those times when you have to stop and deliberate a big decision that will affect the way you pursue parenting and its success.  You may have a possible diagnosis, a medical opinion, and/or the opinions of family, friends and forum members to contend with, fighting for attention in your head.  You have to pay attention to what your body is telling you as well.  Primarily, if you are in a relationship, you must come to an agreement with your partner at each of several crossroads. 

How will you get through these rather large bumps in the road? For the most part, that will depend upon how your relationship already works.

For a couple whose communication skills are quite healthy, facing these decisions may not be too difficult. Secure in their relationship, they may sit down together and have private, peaceful conversations every step of the way.  They will lay out the pros and cons very efficiently, really listening to each other and reading the subtext (that which is not actually spoken) to arrive at a decision that both find acceptable.

The couple who do not talk about much may just launch into medical investigations and treatment without much forethought.  That may seem unbelievable, considering the physical, emotional and financial costs, but it works for some.  This is the couple that knows they want children, want their “problem fixed” and allow their doctor to run the show. “It seems like everyone is having fertility treatment these days,” so why shouldn’t they? One concern is that if they don’t talk about huge issues like fertility treatment, they may not know when they need to be supportive of each other.

Where one person in the relationship is clearly dominant, the person who is in the power seat makes most of the decisions and their partner follows the lead.  When it comes to fertility issues, I would lay a bet down that the woman is making the decisions. This is actually more effective than you might think, in that traditional relationships assign matters of health, wellbeing and family planning to the woman. Her man goes off to work, doesn’t accompany her to the doctor’s office and understands the need for scheduling tests, scans, injections, sex and, well, life.  She only has to tell him where and when to show up to fulfil his parts of the equation. 

 Finally, there are the couples who discuss EVERYTHING in minute detail, who I divide into two camps:1)  The couple who talk about everything with each other and everyone else. Copious research, note-taking, question-asking, Google-obsessing, and forum-hopping is normal for them, but they do finally come to a decision and eventually take a step forward and 2) The couple that goes round and round the issues in circles, saying “What do you think? No, you say what you want first. Please just tell me what you want to do. Maybe we should discuss it more.”  This couple is in danger of losing valuable time in getting their treatment started or moving on to the next available spot with the clinic.

This is Part One of a Series. Please look for the next Part: Coming upon a Crossroads, What You Need To Make Your Decisions.

Lisa Marsh is a Fertility Coach working with people on all aspects of fertility, including female and male infertility, pregnancy loss, assisted conception, alternative means of family-building and menopause.  Visit her blog http://yourgreatlife.typepad.com or her website http://yourgreatlife.co.uk for more information.  For coaching, email lisa@yourgreatlife.co.uk

NHS access to IVF ‘improves’

 Just read this article at BBC online. What really surprised me was the statistic that only 27% of NHS trusts offer 3 cycles. Talk about postcode lottery for IVF

Here is the link to the article-extract from article below

http://news.bbc.co.uk/1/hi/health/8106828.stm

 

Over a quarter of local health bodies are offering the recommended three free cycles of fertility treatment to couples trying to have a child.

The Department of Health said 27% of English primary care trusts offer three cycles - up from just 5% in 2007.

Health minister Gillian Merron said the health service was making “excellent progress” in improving IVF access.

Patient groups welcomed the increase, but said there was still “a long way to go”.

Have you visited the HFEA website yet ?

The Human Fertilisation and Embryology Authority (HFEA for short) is the UK’s independent regulator overseeing the use of gametes and embryos in fertility treatment and research.

The HFEA licenses fertility clinics and centres carrying out in vitro fertilisation (IVF), other assisted conception procedures and human embryo research.

If you want to find out more about assisted reproduction and IVF this is a good place to start.

They have a ‘find a clinic near you’ search in which you simply enter your postcode to find out about clinics and services in your area.

 There is also lots of information about IVF and assisted reproduction including IVF success rates, frequently asked questions, who is eligible for NHS treatment and lots more

I am going to add the website to our blogroll

http://www.hfea.gov.uk/

Changes to fertility services in Norfolk

Just read this stroy online at EDP (Eastern Daily Press)

Infertile women now faced with long journeys to London for treatment may soon have their lives made easier.

As a result of changes to fertility services in the East of England, a Norwich clinic has closed and some women have been told they will have to make repeat journeys to London for scans and in vitro fertilisation (IVF).

But there is a light on the horizon - the Queen Elizabeth Hospital in King’s Lynn and Bourn Hall Clinic in Cambridge are in behind-the-scenes negotiations to bring an outreach clinic to Norfolk.

Read the full story at the EDP online

 http://www.edp24.co.uk/content/edp24/news/story.aspx?brand=EDPOnline&category=News&tBrand=EDPOnline&tCategory=xDefault&itemid=NOED11%20May%202009%2015%3A12%3A50%3A927

HFEA statement on the risk of birth defects associated with assisted reproductive technology

There has been a lot of coverage in the UK press in the last week about the possible increased rate of birth defects associated with assisted reproduction techniques such as IVF

The HFEA (Human Fertilisation & Embryology Authority) has issued a statement last week that helps to clarify things:

24 March 2009

Recent publicity regarding the risks associated with assisted reproductive technology (ART) has prompted patients to contact either the HFEA or their clinic.

We fully understand people’s concern, however it is important to put information of this type in context.

Part of the role of the HFEA is to keep research under review and it is assisted in this role by its advisory body, the Scientific and Clinical Advances Advisory Committee (SCAAC). At its most recent meeting in January 2009, the Committee reviewed the most recent data on risks associated with ART, specifically around the chance of ART babies having birth defects. This report was published on our website prior to the meeting in January. The minutes of the meeting have also been made available on our website.

As can be seen from the papers, our advisors recommended that we revise our existing patient information on the risks associated with ART, to provide more up to date advice that reflects the latest research.

The risk of birth defects in the general population is low. Two per cent of children in Europe are born with birth defects. Some research suggests there might be an increased risk of 30 percent for babies born as a result of ART.  This would mean that the risk rises to 2.6 percent, which is still low. There is not enough data to be more precise but this is the best estimate currently available.

Research to date cannot say with absolute certainty that this increased risk is due to ART. Other causes including the original cause of infertility, the age of the patient or other unexplored factors cannot be discounted. 

In order to make sure patients understand the risks of ART as well as they can we keep research of this kind under review. And where it suggests there may be a greater risk we share this information with patients in a clear way to help them understand the risks associated with the choices they are making.  

However, we still do not know the complete picture. All we can say with confidence is that there is a small risk associated with ART in general.

We will be revising our guidance and the information we give to patients during April. This information will be available on our website.

Click here to visit the HFEA website

Revised lifestyle guidelines for IVF

Just read this article at times online fron 20th Feb 2009. It seems that the governement guidelines on who is elligible for IVF under the NHS are about to be revised.

Currently many primary care trusts refuse to treat smokers or obese women (BMI over 30). Under the revised guidelines PCT’s will not be allowed to refuse IVF treatment on the basis of these lifestyle factors.

Here is an extract from the article:

The new guidelines  will reinforce NICE recommendations that a woman should be aged between 23 and 39 to qualify for IVF will also recommend that clinicians have the final say on treatment. Older people, the overweight and those who smoke should not be excluded, but be considered case by case.

Click here to read the full article

IVF success rates might be improved dramatically by new test

Just read this really interesting article online about a new procedure called Array Comparative Genomic Hybridisation (Array CGH) that has been developed by british researchers at CARE fertility in Nottingham.

It seems that the procedure involves selecting the most viable eggs for use in the fertility treatment, and  screening out eggs with genetic defects ,that would cause them to fail.

 It is hoped that the new IVF procedure will help thousands of infertile couples to start a family.

 It is hoped it will be particularly useful for older mothers where the risk of genetic defects in the eggs is higher and for those with a history of recurrent failed IVF attempts or recurrent miscarriage.

The test has also been licensed for use in younger patients.

 Click here to read the article

Embryo ‘quality check’ could double IVF success rate

Just read this article from The Times today

Here is an extract from the article

Infertile couples could double their chances of starting a family by IVF, with an embryo quality test developed by British and American scientists.

The first trial of the procedure, which identifies embryos with the best chances of developing into healthy babies, delivered remarkable results that suggest it could transform IVF success rates, while helping to prevent damaging multiple pregnancies.

Of 23 women to have their embryos genetically screened with the technology, two have given birth while another 16 are currently pregnant and have passed the point at which miscarriages typically occur. Another two became pregnant but miscarried.

The 78 per cent success rate is particularly outstanding because all the patients had a poor prognosis, with an average age of 37½ and a history of failed attempts at IVF or miscarriage.

Dagan Wells, of the University of Oxford, who leads the research team, has applied for permission from the Human Fertilisation and Embryology Authority (HFEA) to offer the test at the Oxford Fertility Unit, and a British trial is expected to begin next year. The test will eventually cost about £2,000.

It could raise success rates when only a single embryo is used. The HFEA has launched a strategy to promote single embryo transfer, to guard against twin and triplet pregnancies – the biggest health risk of IVF.

Dr Wells said: “The pregnancy rates we’ve got so far are absolutely phenomenal.” The probability that one embryo leads to a pregnancy is doubled, he said. “That means that you’ve got a much better chance of a pregnancy if you do a single embryo transfer.”

The new procedure to detect chromosomal defects called aneuploidies was developed by Dr Wells with colleagues from the Colorado Centre for Reproductive Medicine near Denver.

Click here to read the full story

Click here to read related article ‘Twins on the way after more thorough testing’

Click here to read the fertility docotrs response to the new IVF embryo test

I froze my eggs From The Sunday Times October 12, 2008

Pending Mr Right’s arrival, I had my eggs frozen. But will putting a baby on hold be worth it?

Does accupuncture help women having fertility treatment to have babies ?

A friend of mine who has recently been undergoing IVF has been having accupuncture to aid conception. When she told me I was initially surprised and maybe a tiny little sceptical, but I have since been researching it and found quite a lot of support for this alternative therapy. 

 A recent study at University of Southampton has discovered that one in three women given accupuncture alongside their IVF treatment successfully conceived. The success rate for those who did not combine fertility treatment with acupuncture was one in five.

When i read this the first question I asked was :

How many women were in the study ?

The answer : more than 2000 women

 To me that seems a fairly significant number

The study discovered that the chance of the embryo implanting successfully & triggering pregnancy, increased if the patient was treated with acupuncture at about the same time as the embryo transfer. However if the acupuncture took place days after the fertility treatment the benefit was lost.

How does the accupuncture help ?

No-one really knows how the accupuncture helps conception. One idea that has been put forward is that it may help to reduce the stress that the women is going through, and help her to cope with the treatment. Acupuncture appears to reduce stress by releasing endorphins in the brain. Endorphins are chemicals that the body releases that suppress pain naturally, as well as affect hormones that influence the menstrual cycle.  

One thing is for sure in my opinion, anything that improves the outcomes from fertility treatments has to be a good thing.

And the really good news is, my friend conceived in her first cycle of IVF coupled with accupuncture.

This subject has been covered quite a lot in the national press-here are some links below

http://www.telegraph.co.uk/news/newstopics/politics/health/3042006/Acupuncture-helps-women-have-babies.html

http://www.guardian.co.uk/science/2008/sep/21/medicalresearch.health/print

http://www.dailymail.co.uk/health/article-1059549/Acupuncture-helps-IVF-women-babies.html

Here is some older research finding on the same subject

http://news.bbc.co.uk/1/hi/health/1933901.stm

http://www.acupuncturetoday.com/archives2002/jul/07ivf.html

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